Archive for category Idiocy
There’s no outgrowing it. It’s not a childhood disease. It’s for life. If you have it now, you will have it tomorrow, and next week, and next year, and next century – should you be lucky enough to live so long.
I’ve had several people tell me, now, that they had celiac disease when they were kids, but they outgrew it. And it drives me bonkers. I try to tell them, no, you should get checked. But they don’t want to hear it.
They are absolutely confident, in a way only the blindly faithful can be, that they do not have celiac disease (and I have been guilty of this, too). And meanwhile they have any of a dozen different symptoms that can result from celiac. I feel like I’m watching someone drowning, and I’m reaching out to grab them and drag them back to shore, but they keep telling me, No, no, the water’s warm.
Most of my life, I’ve focused on being a writer. Since I was a teenager, I’ve wanted to write science fiction and fantasy. And then I struck very early success with playwriting, and that became a part of the dream, too.
All I’ve ever wanted was to be a writer. And I’m realizing, that was too narrow a focus.
Please pardon the tangent, I know this isn’t like the rest of my blog. But it’s something I’ve been thinking about a lot lately. Almost obsessively, you could say. And in that way, it kinda fits.
I ran into a writer friend last night and he asked me how it was working as a writer, and I told him it was great. Which it is. And then he asked, well, what about your writing? And it gave me pause.
I told him that I’m not doing much writing outside of work, and he got this incredibly pitying look on his face. He told me that I was out of the game. Which seemed…. flat out ridiculous.
After all the run around and nonsense I went through with Blue Shield (BS) over the last several months, I finally have my authorization to see a nutritionist. Mind you, this would have been more useful when I was re-embarking on the gluten free lifestyle back in July. Better late than never.
Long story short-ish: BS only covers nutrition services for diabetics. Anyone else is SOL.
I am tired.
Very, very tired.
This was last night. 18 times awakened. Bah. And this isn’t even bad in comparison to the last few weeks. For this same night, my CPAP tells me I was averaging 12 hypopneas an hour. This is not good. But it’s better than the 25 I got a few days ago, which, according to the fitbit, translated into 38 times awakened during that night:
Celiac Disease: A Hidden Epidemic says that on average in the US it takes 9 years from the onset of symptoms to a diagnosis. I’m pretty sure it’s taken at least that long for me. Probably longer.
I have what would be termed silent celiac. I didn’t have the traditional intestinal symptoms of diarrhea, rapid weight loss, obvious malnutrition. If I had, I expect I would have been diagnosed a lot earlier. I had hormonal irregularities. The summer before I left for college, my father started having me tested to see why I had such irregular periods. They’d started when I was around 14 or so, but never regularized. I once skipped an entire year.
Today was a tough day. Healthwise.
I’ve been on a gluten challenge for two weeks now, at the insistence of the celiac specialist I’m seeing. And… she’s not wrong. I need an intestinal biopsy for an official diagnosis, which will make insurance a hell of a lot easier to deal with. And that requires me eating enough gluten to damage my intestines. But…
There are about a billion symptoms that go along with celiac disease (okay, that’s a bit of an exaggeration), and I’ve got half a dozen of them at the moment. Most distressing was the realization that I’m not actually absorbing the vast majority of my medications. And yeah, it’s pretty obvious. And no, I’m not going into detail on this one. Rare though discretion is on my part.
I’m hesitant to be publically critical of doctors. They don’t like that, you see. And getting decent medical care can be dependent on how much your doctor likes you. In a perfect world, it shouldn’t be. But. It often is. So, as I said, I don’t like publically criticizing doctors. However (you could totally tell there was a however coming, couldn’t you?)…
The doc I wrote about meeting several weeks ago is… well… either he’s a flake or an idiot. I think I’d prefer thinking he was just a flake.
He was nice enough. Pleasant and friendly. Sat down with me to talk about the Celiac screening test I’d had done. And here, in bulleted list, were the things that bugged me: